Tuesday, August 1, 2017

A look back to share the good!





As many of you know from Facebook, Mia was able to attend the wedding! The bride and her bridesmaids were very nurturing of both girls and included them in every way. Gabriella and Mia had so much fun they had to be pulled off the dance floor at the end of the night! It was such a wonderful celebration of two amazing people and the end of a long week for Mia. We know she would not have gotten better without all the prayers! Thank you all!


In light of celebrations, I would like to celebrate Mia's success and new adventures she had over the last several months.  Seeing as I have neglected to update this blog this year, I am starting way back in the winter! 




                                
Skiing! Without much snow this winter, we only made it to the slopes once but Mia and Gab enjoyed their first experiences. Fatigue set in quickly for Mia and she endured about an hour but she said it was fun, especially the magic carpet!!


In the spring we took the kids to NYC for a weekend. I was so proud of all the walking Mia did. We stayed in New Jersey, road a train into the city and took the subway everywhere. She was wiped out after that trip but she LOVED the Statue of Liberty and The Museum of Natural History. Times Square was too overwhelming so we walked a few blocks and left.


You would think, living so close to Letchworth State Park, we would have taken a trip here before now but that is not the case. We finally made it. The big kids really liked it and can't wait to go back hiking. Mia loved looking at the falls.



There she goes! Mia endured one of the hottest days of the spring at Special Olympics. She really enjoys participating in this awesome event and all her grandparents come to cheer her on. It is such a special day for us. Mia's face lights up. Look, she even waves to the crowd as she runs!!



Mia's second year of Challenger Baseball is better than the first! She looks forward to her games and played on Frontier Field this year. This is her in the Red Wing's dugout!!! She has made new friends and enjoys running the bases. 


What can be better than kicking off the summer with friends at an amusement park? Fun times were had at Darien Lake and it was the first time on the big Ferris Wheel! 





And finally, our hospital stay. Yes, this is part of my list of celebrations, not because Mia was sick and had to go to the hospital, rather to see the improved accommodations of the new Children's Hospital. The rooms are all private!!! They are very spacious, allowing all six of us and visitors to fit comfortably. There are showers in every room so I was able to stay right in the room and just have Dave bring me clean clothes. A Ronald McDonald wing on the first floor provides amenities such as laundry facilities, snacks, coffee, sibling watch and a wonderful library! Mia's Marchers has been raising money for 9 years now with our totals around $75,000. How wonderful is it that our efforts are being enjoyed during the most difficult time for families. I am also celebrating the fact that it has been 2 years since we had an overnight stay. We have been in for outpatient surgeries and procedures but nothing too major. The first picture above is the view from our room and the second is Grace's Garden. The rooms are bright and the garden gave me a chance to breathe and regroup. Mia enjoyed some pretty entertaining birds!!

Thank you for sharing in all our ups and downs! My next post will most likely be a medical update!! Hope everyone is enjoying some sunshine!