I intended to post much sooner but every day seemed crazier than the one before! Between phone calls, getting Mia's new medical supplies in order, visitors, visits to schools and everyday happenings of the whole family, it took a full week to unpack! I still have not finished sending "thank yous" so if you have not received one yet, please know it will hopefully be on its way soon!
When we arrived home last Saturday, all the kids were waiting for us in the driveway. Gabriella was so anxious to hug Mia that she climbed in the car and began unbuckling her before Dave or I opened our doors! The rest of the night they were inseparable. They immediately went into their room and began making up for lost time. The girls are so happy to be back together!!! For me, it was heaven hugging my other kids again!
Two days before we came home, while in the hospital, we learned how to cath Mia through her new "port"/stoma (the Mitrofanoff). This process, while not painful but a little uncomfortable, left Mia hysterical! She needs to be cathed every two hours so every two hours were dreaded by all! Thankfully, we had WONDERFUL nurses this week (two who took care of Mia at Daystar!) who helped Mia work through much of her anxiety. She went from screaming to helping in just one day! Thank you Monica! Although she is trying to accept her new body and life, she has a long way to go. She asks the same questions daily. "Why did God make me like this?" "Why do I have stoma?" "What is this for?" "How long will we have to cath?" The questions go on and on.
Being home has definitely helped Mia's spirits and mine, however, it also has its challenges. Home, and everyone at home, is the same but Mia is different. Because Mia is hooked to a urine bag at night she cannot get out of bed without one of us. We have a baby monitor set up so we can hear when she gets up. She continues to have spasms at night which wake her and her anxiety comes out at all times throughout the night. She will wake with all of those same questions. It is like having a new born all over again! Because we have to cath every two hours, our daily activities/schedules need to work around that as well. It's just a matter of finding our new normal.
As usual, Mia continues to amazes all of us! Although she is working through anxiety and varying emotions, she wants so much for things to be normal again. "Normal" includes going to school! Yes, she wanted to get on that bus with her sister this week! Thursday morning she decided she wanted to go, ride the bus, attend school and ride the bus back home. No half day for this girl! No rides from mom. I was nervous but also know that the quicker she gets back to her old routine, with her new changes included, the quicker she will accept things as being what they are. She went to school Thursday and Friday but did have a meltdown Friday afternoon. All the questions began and tears were flowing. She said, "I'm sorry. I didn't mean to cry but sometimes I just randomly cry. I don't know why!" Again, school and friends haven't changed yet she has. She will have to find her new normal at school as well! We are blessed to have our Plank North Family helping every step of the way! Mia is so happy to be back with Mrs. Roumpapas.
So much for this little girl to process and accept yet she continues to smile and push forward!