Even the girls get pooped from all the spinning (the messy house is a constant side effect)!
I will start the spinning wheel with Mia's Dr. appointments. We met with her wonderful cardiologist. It began with just a weight check that put Mia over the edge as well as her sister, who tagged along to supervise Mia's visit! They tried to do an EKG but unfortunately were unable to because Mia was hysterical crying (and so was sissy). The Dr. was able to listen to her heart with his stethoscope and get her to smile maybe once or twice. Because Mia shows no signs of cardio stress in her daily life and her heart sounds good, tests are not imminent. She should have an ultrasound and an EKG but will have to be sedated. If she needs to be sedated at some point for another reason, we will schedule those tests. Otherwise, we will just continue to monitor her.
Finally, the eye doctor. We have been patching Mia's eye left eye for 8 weeks. Her right eye turns in and appears weak. After patching for eight weeks, the eye continued to turn in more. We are going to patch for another eight weeks. We patch her eye two hours a day. Hopefully we will see some improvement this time....if she keeps the patch on. By the end of the 6th week, she had figured out that whenever I walked and/or looked away, she could whip her patch off. Even sitting with her for the full two hours, she pulls the patch off constantly. So, we battle and sometimes...she wins!!
Mia's therapies are going very well. She is now using a stander, in addition to her walker, in order to increase her weight bearing. She uses the stander for about an hour a day and we are trying to increase that. Although, I have to be honest, I am having a hard time fitting everything in: 2 hours of patching, an hour of standing, time in the walker, therapies, baths and trying to get outside in the pool with the other kids. All of this between tennis, soccer, swimming, library and play dates for the older kids. Anyway, these are the busy days of summer! Mia's speech is growing by leaps and bounds. She tries to copy everything sissy says. She even repeated her first string of three words, "I don't know", which sounds like all one word! But we know exactly what she is saying. And if you can believe this, she is beginning to count with me!!!