Yes, the good keeps on coming!
Monday, Mia will visit the ophthalmologist again. Her right eye has been turning in. This was happening in the Fall but had corrected itself after her shunt replacement at the end of the year. Unfortunately, we have been watching it get worse. That eye also tears quite a bit. Her vision therapist expressed some concern as well so off we go. Hopefully, it will be something minor!
Now for the ugly!
The day of my son's birthday, we ended up in emergency with Mia. Yes, parties had to be postponed and once again, my oldest kids had to roll with the punches, even on a birthday. Thankfully, they have wonderful grandparents who helped make the night special and carried on a special birthday without us.
After waiting for a few hours, they did an x-ray of the shunt to make sure there were no knots in the tube or clogs. We waited over two hours for the results. In the meantime, I asked if Mia could have something to eat and/or drink seeing she hadn't eaten much since her fever began and she had vomited what little bit she did have. Of course, she could not have anything in the case that she may need surgery.
Two hours later, they came in to take her for a CT scan, a normal occurrence for Mia. Now, we had just had a scan two weeks prior so Mia is very used to this machine. By saying she is used to it does not mean she likes it! In fact, she HATES it!!! She screams every time! They ALWAYS strap her in like a mummy and tape her head tight so she cannot move, although she tries very hard!!! Well, the technicians on duty that night, decided they didn't want to wrap her tight. Their plan was to wait until she calmed down. I kept telling them that will NEVER happen, unless she screams for hours. They taped her head and left her screaming in the machine for 25 minutes. At that point, I asked them to remove her if they weren't going to take the scan. She already has a fear and this was definitely making it worse. Not to mention the fact that CT scans are going to be frequent occurrences for the rest of her life! So, they sent us back with no scan (this has never happened before).
When we got back, they wanted to catheterize her and get blood. Well, as you can imagine, the cath was unpleasant to say the least AND surprise, surprise.....SHE HAD NO URINE! I had only been telling them for 5 hours now that she needed something to drink. Luckily, she peed, on her own, after they removed the tube. It was very little but they were able to catch it. Next, the blood and IV line. Basically, after much screaming, they got the line in. In the meantime, they took the blood and set it aside. By the time they got the IV line secured, the blood they took clotted and could not be used. They were not able to flush the IV line so they couldn't use that either. They decided not to torture her anymore and just sent her home. The bottom line is, we left there with a shunted baby still presenting with a fever (which they hadn't taken in two and a half hours before they discharged us), no CT scan and no blood work. Fever, CT scans and blood work are actually critical when diagnosing a shunted child! That trip to the ED was absolutely useless! Thankfully, her fever broke the next day and we chalk that experience up to just "another day in the life of Mia"!
Back to the good!
want everyone to be the same. That would be boring. And, He wants to see how the parents love them when they are different. It's like I've always said mom, Miama is SO cute with that BIG head and little face and BIG head and little body. She is just so cute!!! God gave her to us because we love her and we think she is just so cute." I was almost in tears. I could not have said it any better!!